One, my husband’s Parkinson’s disease. It’s a tough break for such a splendid man and in spite of all the stiffness and fatigue and slow-motion, he’s Mr. Positive. But then you’ve got to be with this stuff, or you’d never get out of bed in the morning. You’d surrender to your cement-filled joints and then allow yourself to sit around recovering from a hellish morning of rising but not shining. Television would soon rule your life and there’d be hell to pay for anyone who nudges you to do more. You’d sit there, stone-faced and barely moving. You’d be the rusty tin man without oil-can relief.
When Steve was first diagnosed back in 2003, both of us were cool, calm and accepting. We were sad but not yet mad, and I remember my sunny husband saying, “If I had to get something neurological, I think this is a good one to get.” Really?
I had just lost two parents to cancer, and as I sat across from him in the diner I almost thought he made a good point. Parkinson’s wasn’t going to steal him too soon, just make his everyday movements torturous and sometimes dangerous. Like hopping in and out of a car, eating a salad, pulling on underwear or threading a belt through the loops of his pants. It made me mad to witness the downshift in his life’s power and pace, but I had to put a sock in it. Tamp it down. Squash it. Steve wasn’t to blame. No one was to blame. His brain wasn’t making enough dopamine. Should I be upset with his nerve cells? OK. Works for me. It’s their fault.